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Being a poetical type, I like to think of this as the twilight time of my thyroid diagnosis. There’s a little bit of light being cast by the moon, but it is kinda hard to see on account of the growing darkness (it’s always darkest before dawn, natch).

I could go on with the clichés – dark night of the soul and all that. But hey, I’ve had several of those already and they no longer freak me out…

But I reckon it fits: this is the twilight time, the settling dusk. While I do know what’s coming (sort of), it’s gonna be a while before sunrise makes an appearance.

Saw the doctor this morning for my blood test results and yessum, I hit the hypothyroid jackpot – Hashimoto’s – which is the autoimmune version of this dis-ease.

But then apparently, most people diagnosed with hypothyroidism will have Hashimoto’s. For whatever reason, that’s just how it is.

My naturopathic-MD friend, the one who described thyroid problems an epidemic? She wasn’t wrong. At least two of my friends also have the same condition. Another friend possibly does, but she hasn’t had the tests to confirm it yet. I had a lovely Skype chat with one of these friends on the weekend. It’s good to have some love and support from someone who’s been through it all.

Right now there’s a lot to digest. And hey, I get that this isn’t cancer (at least, probably not!) but it IS a life-long illness that requires constant monitoring and careful caring for my physical, mental and emotional well-being. Which is the sort of stuff we should all be doing for ourselves anyway, and yet most of us don’t. Until we have to, which is the boat I now find myself in along with millions of others.

Where to begin? Currently, this is where I’m at…

I’ve been taking hormone tablets for a month now. I’m quite ambivalent about that, being more into natural/alternative therapies and I honestly haven’t noticed that much difference since I started them. On the other hand, I did notice a significant difference when I began my epic consumption of vitamins/minerals/amino acids.

Symptom-wise, my energy is still up and down like a yo-yo. I need LOTS of sleep and always wake up tired. Even though I need sleep, I sometimes find it hard to stay asleep for a full eight hours. If I have a busy weekend or if I’m out after work a couple of nights in a row, the next night MUST be a rest night. It’s like a car running out of petrol – I simply stop. My monthly cycle still makes me feel like I’m about to die (no exaggeration). And of course, I am still not losing weight, no matter how well I eat and take care of myself.

I didn’t even really know what to ask my doctor today, despite all the reading I’ve done in the last month. I mentioned some of the research and information I’ve discovered, but it seemed like I had to prompt her to tell me anything useful.

Apparently cutting dairy is recommended in addition to sugar and gluten – these food stuffs are considered toxic for people with Hashimoto’s (lately, I’ve begun noticing my distaste for sugary anything). I also need to be careful with my consumption of carbohydrates (which are basically sugar). All of which – with the exclusion of gluten – is stuff people do to lose weight.

Someone even commented on Twitter that as a result of these changes, I’ll be skinny. BUT. But. This isn’t necessarily the case, because the thyroid is intimately involved with the metabolism, and my thyroid is faulty. It’s going to take time and a fair bit of trial and error to figure this all out and it still doesn’t mean I’ll be “skinny” when I do.

{Confession: there’s still a part of me that hopes my Hashimoto’s isn’t “that bad”. Which is disturbingly similar to how I viewed the beginning of my (undiagnosed at the time) slide into PTSD-land. Luckily I know better now.}

However in some ways this is true: currently I only have a mild level of autoimmune antibodies – which can easily become worse without appropriate treatment. My situation is complicated because I’m also ridiculously deficient in iron, B12, and vitamin D. So my doctor thinks it’ll be six months or so before we’ve got a better view of what’s going on.

I think I get it though – she’s trying not to overwhelm me with a billion pieces of information. She wants me to make small step-changes, bit by bit. But it’s hard, because I don’t want it to take so long and I like to know everything up front.

Next up for me is to get an ultrasound for my thyroid (there’s such a thing as thyroid cancer that needs to be ruled out), and see an endocrinologist who specialises in thyroid disorders.

I’ve got a referral, a bunch of test print outs and two extra supplements to take (selenium and Activated B6). I have another referral too; for a kinesiologist who has herself had thyroid issues. Also on my team is my acupuncturist.

There are other specialists that I’m getting in touch with as well… but my budget can only take so much at any one time!

So I guess this is throw the (gluten free) spaghetti at the wall and see what sticks time. I don’t know what will work yet and until I do, I’m gonna keep throwing spaghetti, if y’know what I mean…

~ Svasti